Update (22 March 2015)
It is with unbearable sadness that we have to say that Nikki died on 21 March 2015. She had received her transplant only 9 days earlier, but regrettably she suffered an infection and a range of other complications from which she never recovered. We will keep Perfect Ten Match going as the need to recruit donors continues, but will be active in our campaign only when ready.
Nikki’s introduction (updated 12 March 2015)
My name is Nikki and I underwent a bone marrow stem cell transplant in March 2015.
I launched this website in 2014 in order to find a suitable donor to give me hope that I can recover from this disease. I have now had my transplant, but I want to use the interest my story has generated to encourage others to register as a bone marrow stem cell donor, in order to help others in the future.
I was diagnosed with acute myeloid leukaemia. My disease has a rare cytogenetic abnormality called the ten-eleven translocation, which put me at a high risk of relapse following chemotherapy. This relapse has now occurred in September 2014 and the search is on.
My best chance of a cure was to have a bone marrow transplant.
My search for a bone marrow match has been complicated by me having extremely aggressive antibodies. A donor was found in France, but unfortunately they were only a 9/10 match. The best chance was a Perfect Ten Match but because of how my disease progressed, the fact that time was running out, and doctors had techniques to control my antibodies, my transplant went ahead with the 9/10 donor in March 2015.
We continue to seek donors who may help others in the future
- We encourage people from all backgrounds to join one of the bone marrow donor registers, but especially if you are from a black and minority ethnic or mixed heritage background, as people from these groups are less likely to have a well matched donor.
- In the UK, you can join the Delete Blood Cancer register for those aged 18-55.
- The British Bone Marrow Registry, also allows those to register aged between 18-49 and is easy if you already give blood.
- Also in the UK, for those aged 16-30 can register with the Anthony Nolan Trust for those aged 16-30.
- For information for donors worldwide – in particular Perth, Australia, where there is a large Anglo-Burmese community – please see the list of Bone Marrow Registers.
- News outlets are welcome to use the Press Release & photo here.
Thank you for your help.